Malaysian Applied Biology Journal

  • Increase font size
  • Default font size
  • Decrease font size

47_01_21

E-mail Print PDF

Malays. Appl. Biol. (2018) 47(1): 145–151

 

CARE-GIVING CHILDREN HAVING DOWN SYNDROME – LIFE

IMPACTS AND PSYCHO-SOCIAL EXPERIENCES OF MOTHERS


CHAN KIM GEOK


Department of Nursing, Faculty of Medicine and Health Sciences,

Universiti Malaysia Sarawak

E-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

Accepted 20 January 2018, Published online 31 March 2018

 

ABSTRACT

This paper highlights the life impacts and psycho-social experiences of mothers who caregiving their children having Down syndrome in the Malaysian State of Sarawak. In-depth interviews were conducted with 26 mothers who were accessed and recruited via selected health clinics, schools and community-based rehabilitation centres. Bringing up children having Down syndrome had impacted upon mothers to some extent in term of their family functioning, increased competence in childcare and motivation to reach out to others. Psycho-social experience of mothers includes a range of difficult emotions, feeling unsupported, their worries and concerns about recurrence of Down syndrome. Integral to their experience was the excitement and joy with child’s progress. Care-giving children having Down syndrome did have some life impacts upon mothers though their experiences are not all negative. It augurs well for care professionals to be needs-sensitive and to provide timely supportive care to facilitate the mental well-being of mothers and an environment helpful for the optimal development of their children.

Key words: Children with Down syndrome, life impacts, Malaysian, mothers, psychosocial experiences

 

Latest MABJ issue

Vol 47(3) June 2018

Cover Photo

Table of content

Latest news!

According to MyCite 2014 report, MABJ ranked 95 out of 142 Malaysian journals in terms of yearly impact factor.